Growing Jack the Silly-Yak’s Coeliac health message

Community Stories, 27 August 2024

Ten years ago, when Alex was diagnosed with Coeliac Disease and two other autoimmune conditions, she quickly learned how tough it was to find safe, gluten-free food – especially in a regional town. But it wasn’t just about food; explaining her condition to others was a challenge too.

Her personal experience sparked the creation of “Jack the Silly-Yak,” a character initially brought to life in a children’s book to help young people understand Coeliac disease in a fun and approachable way. Jack the Silly-Yak soon became a live, interactive musical and imaginative play, performed to children in regional NSW.

From this work, Alex knew there was more to be done to make Jack the Silly-Yak more accessible to kids with chronic illnesses in other regional communities.

With the help of a $6,330 grant from FRRR through the Sally Foundation Trailblazers Development Fund, Alex was able to take Jack the Silly-Yak to a whole new level. Partnering with the Hunter Business Centre, they developed The Giggle and Learn program. This online program includes three music videos and three seven-minute episodes starring Jack. These episodes mix music, craft, cooking and community outreach to create something fun and educational for kids and their families. Plus, there are downloadable resources so families can easily access everything they need to learn about living with Coeliac Disease and other chronic illnesses.

The outcomes of the video program have been remarkable. Alex is thrilled with how well the program turned out, saying, “I’m so proud of the quality of this program and how it gives the same level of fun and information that my live shows do.”

The Jack the Silly-Yak grant project has successfully expanded the reach and impact of Alex’s original vision, ensuring that kids with chronic illnesses are not only seen and heard but also empowered and supported, no matter where they live.

The online program has made it possible for families across Australia to access critical information about living with chronic illnesses. Whether in a city or a remote regional town, children and their families can now learn about Coeliac disease and other conditions in an engaging and easily understandable format.

Through the project, Alex has been able to develop meaningful relationships within the gluten-free community. These connections have helped to strengthen the message and value of the program, ensuring that it resonates with families and communities alike, as well as helping to grow the audience and therefore increase awareness and representation of both Coeliac and non-Coeliac kids.

One of the most rewarding aspects of the project was the opportunity to support regional creatives, by providing paid and fulfilling work to four filmmakers and artists. Supporting local talent is a key focus for Alex, and she is committed to continuing this approach in future projects.

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Amy Crawford

Amy Crawford has an extensive career in complex public policy and its intersection across government and communities.

Amy is the Chief Executive Officer at the Australian Local Government Association (ALGA), representing 537 councils across the nation. Amy holds over 20 years’ experience in the Australian Public Service. She has a deep understanding of federal government policies and structures, with over 10 years’ service in the Department of the Prime Minister and Cabinet and has worked for the federal Minister for Regional Development, Local Government and Territories. Amy has shaped a wide range of policies and programs including regional development, telecommunications, immigration, emergency management, social policy and pandemic preparation.

Amy is a Board Director of Austroads and represents ALGA on the Public Skills Australia Industry Advisory Group, and the Australia-New Zealand Emergency Management Committee. She is also a Board Director for the Canberra Youth Theatre which provides voice for Canberra’s youth through intelligent and challenging theatre.

Amy holds a Bachelor of Laws (honours) and Bachelor of Arts (Media and Communications) from the University of Queensland, is a graduate of the Australian Institute of Company Directors and an alumnus of the Cranlana Centre for Ethical Leadership. Amy was appointed to the FRRR Board in January 2025.

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Kylie Hansen

Kylie brings leadership and management experience from across academic, corporate, not-for-profit, social enterprise and impact investment sectors, having deep dived into a myriad of specialisations and systems. Her six tertiary qualifications are equally as diverse and complimentary, covering commerce, politics, international development, community development, project management and law. Her breadth and depth of experience enables her to draw on a number of disciplines and innovative ways of working and thinking, and she is well recognised as consistently delivering work and services of a high quality.

Kylie uses her strong background in sustainability, governance and impact measurement to support collaborative initiatives across sectors oriented at improving social outcomes, and to support socially conscientious businesses to articulate their social impact. As founder and director at Impact Seed she has been instrumental in developing the impact measurement, evaluation, learning and ESG practice which advises numerous corporates, and is passionate about supporting First Nations empowerment particularly in the context of regional economic development.

Kylie is also a Director of the WA Social Enterprise Council, a member of the B Council (B Lab Australia and New Zealand), and a Governor of the World Wildlife Fund (WWF).

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Hon. John Anderson AC

The Hon. John Anderson AC is a sixth-generation farmer and grazier from NSW, who served in the Australian Parliament from 1989 to 2008.

He was a senior Cabinet minister in the government led by John Howard (1996 to 2005), including six years as Leader of the National Party and Deputy Prime Minister.

In the latter role, Mr Anderson played in important role in FRRR’s history, working closely with Baillieu Myer AC and others on a proposal to establish a philanthropic organisation to benefit rural Australia. The concept was discussed at the National Regional Summit in 1999 and FRRR was established shortly thereafter.

Mr Anderson currently hosts a regular podcast, where he is in conversation with thought-leaders from around the world, and is a regular media commentator.

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Regina Cruickshank

Partnerships Specialist (WA)

Regina supports FRRR as the WA Partnerships Specialist. With over two decades of experience in partnerships and marketing, she has a deep understanding of Western Australia’s social impact landscape. She brings a strong passion for leveraging purpose-built networks to create positive change.

Regina previously worked with Playgroup WA and founded a Health Promotion Charity dedicated to supporting Social Emotional wellbeing for underserved communities. She’s excited about the opportunity to connect with partners and explore ways to make a meaningful difference in WA.

She lives in Perth with her family and enjoys mindful moments of connection to Country, whether on horseback, on foot or underwater.

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Anna Palmer

People and Culture Manager

Based in Central Victoria, Anna is a senior Human Resources, Organisation Development and Industrial Relations professional, with significant private and public sector experience across every facet of people and culture leadership.

Her most recent roles have been with Don KR in Castlemaine and Mount Alexander Shire Council. She has also held senior HR roles with Victoria Legal Aid and the TAC among many others.

From Mildura originally, Anna has postgraduate qualifications in Change Management and a Masters in Organisation Dynamics.

Anna is currently completing a Bachelor of Fine Arts to balance her creative pursuits and work as an HR professional.

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Philippa Twaddle

Management Accountant

Carolyn joined the FRRR team in March 2017, and is responsible for providing executive support to the CEO, effective coordination of the FRRR office and general administrative support to the management team. A key responsibility is supporting the administration of FRRR’s Donation Account Services.

She has over fifteen years’ experience working in local government in the Tourism and Arts Sector, Civic and Event Management and Community engagement.

Carolyn has a Bachelor of Arts in Librarianship, majoring in psychology, and grew up on farming communities in Cohuna and Echuca and currently lives in Bendigo.